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Journal of Deaf Studies and Deaf Education 8:3 2003
© 2003 Oxford University Press

Empirical Article

Decisions Hispanic Families Make After the Identification of Deafness

Annie Steinberg

University of Pennsylvania School of Medicine

Lisa Bain and Yuelin Li

The Children's Hospital of Philadelphia

Gilbert Delgado

Delgado Associates

Vivian Ruperto

The Children's Hospital of Philadelphia

This study examines the decision-making process for Hispanic families living in the United States who have a child with a hearing loss. Twenty-nine families in four geographical areas shared their experiences in searching for appropriate interventions and making choices regarding communication and education. We explored the impact of language, culture, minority status, and access to information and services on the decision-making process. The results indicate that the deliberations of Hispanic parents are often complicated by language and cultural barriers and by limited access to information, resources, and a full range of options. The communication method chosen tended to be the one recommended by professionals, usually a combination of spoken English and sign language. Parents frequently expressed the hope that their child would learn Spanish as well. These subjects displayed a higher degree of assertiveness in obtaining services for their children than other studies have suggested.

Correspondence should be sent to Annie Steinberg, Children's Sea-shore House at The Children's Hospital of Philadelphia, 3405 Civic Center Blvd., Philadelphia, PA 19104-4388 (e-mail: drannie{at}mail.med.upenn.edu)

Received May 2, 2001; revised July 7, 2002; accepted September 16, 2002


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